When you first start writing seriously you tend to look for others in your situation, or at least that’s what I did. When you don’t find any, or at least what you were looking for, you start looking at other health blogs for a “similar enough” community to try to emulate.
I found myself reading a lot of CF blogs, and learning a lot from them. I didn’t find everything missing from the CP community that I had been looking for but close enough. I wanted to connect with people in the CF community to see what I could learn and bring to the CP community.
For example: the issue(s) of transitioning from pediatric to adult care since CP & CF are both lifelong conditions that involve transitions.
It didn’t take long before I found Run Sickboy Run. It seemed like every CF blog mentioned Ronnie at least once. Clearly he was good at whatever he was doing.
I’ve been able to learn a lot about self-advocacy as well as blogging in general from Ronnie. If I can have a quarter of the impact on the CP community that Ronnie’s had on the CF community than I’ll consider it a success; because I don’t think I can even come close to what he’s done (like creating a social network for the CF community).
He’s also been kind enough to respond to my comments for him & leave his own for me. It’s truly something that makes a small time blogger happy. He’s also been nice enough to share his knowledge with me when one of my doctors brought up the possibility pulmonary function testing.
It’s from getting to know Ronnie though his blog (& guest posts by other CF patients) that I’ve found the type of community that people with CP should be a part of. In fact I’ve been suggesting to the professions since I started reading CF blogs that we should look to the CF community as a model for medical treatment; and believe it or not someone brought up the same idea at a CP conference.
Simply put, thanks Ronnie for all you do.
There are two other individuals I have gotten to know that blend health activism and everyday life well:
They both show that professional patients are just normal people who just probably more familiar with their doctors.
*A similar version of this post was written on April 14, 2013
I’m participating in WEGO Health’s Health Activist Writer’s Month Challenge. If you want to find out more about Health Activist Writer’s Month Challenge visit their blog, Facebook, Twitter. You can find more posts by searching #HAWMC.