There’s a nice thing that comes with having a blog, you can pretty much put your thoughts out there and let it go. But there are times when people want to engage with you, and it’s great, but also a challenge.
Having a blog about CP is no exception, especially when resources are limited and CP is such a broad diagnosis.
Did you know? No two people with CP are affected the same? Every person has a different pattern of brain damage a bit like your finger print
— CP Teens UK (@CPTeensUK) March 4, 2017
Even if two people with CP have the exact same diagnosis on paper it doesn’t mean that they’re effected the same way, in fact I can almost guarantee that they won’t be effected the same way.
So, when I get asked questions or get presented with other people’s opinion on my care, or the case of others, I ask everyone to take it with a grain of salt.
I don’t have all the answers, but no one else does either, but it’s hard to remember that when you so desperately want answers (or want to give advice).
It’s natural to want to be surrounded in a community of people you have something in common with but when it’s something like Cerebral Palsy it can be hard to find the common ground you’re looking for because at first someone may seem “like you” but when differences start to appear it can be hard to not compare & contrast (and then potentially get bitter).
We are a community, but it can be easy to forget that we’re individuals first.