Hear My Cry

I devote the month of March to posts about Cerebral Palsy awareness, since March is Cerebral Palsy awareness month & I have Cerebral Palsy it makes sense.

There’s only one problem.

I have no idea what to write about.

No.

Idea.

At.

All.

Part of the problem is that I’ve written a fair amount about Cerebral Palsy already.

There isn’t an endless well of ideas to draw from, contrary to what many writing teaching and consultants will tell you.

It’s almost February, which means it’s almost March, so I need to get working.

I have a few options, like repost previously published material; but been there done that, will probably keep doing it on occasion.

I try updating material that I’ve already published on the off chance I’ve changed my thoughts and opinions, but that seems unlikely for a few reasons.

I troll the internet for ideas, but most blogs I’ve followed for ideas have long been abandoned for one reason or another, and I’ve probably drained them for ideas already.

I compile some guest posts, I’ve done it before so it’s not completely out of the question, but I’m not the biggest fan of a marathon of material not written by me on something that belongs to me. I would need to vet people and posts, something that takes time and energy, possibly more than if I just wrote for myself.

And the option I like most of all, I open up the floor, meaning I take suggestions.

So, I’m taking suggestions, answering questions, welcoming the idea of potential contributors, and anything else.

Advertisements

Proof Of Disability

I’m one of those lucky individuals whose state issued identification and handicapped parking permit expire at the same time.

I know it happens, so I knew it was going to happen to me, eventually.

I wouldn’t have to do this if the state had kept their policy of lifetime handicapped parking permits.

What’s that they say about bad apples?

Anyway, back to the paperwork……

Naturally one can not just get another parking permit at will, because that would be just too easy, and make too much sense.

Instead I have to prove that I am still disabled.

Stupid, yes. But not the stupidest part.

Knowing about the paperwork I tried to plan ahead, tried being the important word here.

I wanted to bring it to my last PM&R appointment, but it was too early, you know because disability, even permeant ones, come with a timeline.

So that leaves me with one viable option, the fax machine, and hope nothing lapses.

Why are we still using fax machines?

Is it wrong to think that life would be just a little bit easier for everyone if we eliminated fax machines?

I understand why the policy change had to happen, but I also know it’s ridiculous. There’s no way I’m going to become able-bodied, no matter how hard I work at trying to change it (if I really wanted to).

Bottom line: having to prove disability is necessary, having to prove it again and again is redundant and pretty pointless.

Think for a minute of the life cycle of paperwork:
-I take it, fill it out and send it to my doctor
-My doctor’s assistant, or someone else, passes it on to my doctor
-My doctor has to take time out of his schedule to fill out said paperwork
-My doctor’s assistant, or someone else, sends it back to me.
-I receive the paperwork, review it, and send it to the DMV
-The DMV reviews the paperwork and sends me a new parking permit, that is if they don’t loose the paperwork or forgets to mail my new permit

It’s 3 pieces of paper that could eat up hours in the day of multiple people, time that could probably be spend doing other, and possibly better, things; like things that affect everyone, not just those with disabilities.

I understand the need to prove my disability, because the scams run wide and deep, but do I really have to keep proving it?

International Day Of Acceptance

IDoA

When I started gaining attention for being an “adult with special needs” (seriously that’s what I’ve been called, more than one should), I spent time reading other blogs, mainly seeing if there were any common myths out there that needed to be debunked (not many worth debunking, for the record).

I noticed that a few people, mostly CP moms (as in moms who have kids who have CP), would mention something called 3E Love. Curiosity got the best of me so I checked out 3E Love for myself.

I bought my 1st wheelchair heart tee shirt (& sweatpants) at my first Abilities Expo. I LOVE the sweatpants. I wonder how I ever traveled without them.

I bought my dad his first shirt before his first Abilities Expo, and did the same for my cousin (it’s become a tradition I guess).

Several people in my life have 3E Love products; my dad even uses a 3E Love sicker to cover up a ding on his car.

I was able to hear Stevie (also known as Annie’s brother) share the story of 3E Love & speak to him personally a few times.

I never had the opportunity to meet Annie but I have a feeling I would’ve liked her based on what I know about her. Our shared skill of using kitchen tools as accessibility aids notwithstanding, I’m pretty sure she was an awesome person to know.

3E Love & the Wheelchair Heart were created by Annie (also known as Stevie’s sister).

wheelieheart

Stevie & his family started the International Day of Acceptance as a way of remembering Annie.

Join in the movement of acceptance.

*A similar version of this post first appeared on an old blog on January 20, 2014 & January 20, 2017

12 Days Of Christmas, Kinda

There are so many reasons why I hate the start of the Christmas season, at least the commercial version of it. I’m not sure when it started but I was ecstatic in college when I was given an Advent calendar that included the Christmas Octave.

My cousin says it’s because I know too much, that may be the case now, but back then I think it was just an annoyance.

I hate having to buy Halloween decorations in early September, that Christmas movies run 24/7 on some TV stations from October 1st through New Year’s, and the supposed “war on Christmas, among other things.

I look for anything for an escape, at least until Gaudete Sunday, so imagine how I felt when my coach told the group about the “12 sets of Christmas” challenge.

I’ve heard stories about swim practices during holiday breaks, “Grinch week” or “hell week” are common terms, although mostly in younger groups. Usually time around the holidays is devoted to fun games that happen to double as technique work or some sort of cross training, so I thought the sets would be like that.

No.

It was going to be unpleasant, to the point where I would probably hate it.

I tried making the argument that it was Advent and not Christmas, at least at the time. I threw out the “Catholic card,” knowing it wouldn’t get very far but it was worth a try. It wasn’t totally bailing on the challenge, just putting it off. Anything that would buy me a few more days without time trials makes for a better practice.

However, the “12 Sets of Christmas” was to be completed in December. Thus, covering both the Advent and Christmas seasons, more or less. So even if my argument had held up it wouldn’t have been for long.

It did get me to focus less on Christmas and more on what I was actually doing, which is a good thing, and an essential for a 400-yard Individual Medley, for time, among other things associated with swimming well, or at least well-ish.

I survived Advent and Christmas, and the associated swim sets, actually, I think the swim sets helped take the edge off the intensity of the holiday season.

Although I think it’s weird that the Valentines paraphernalia made an appearance during Advent.

One Word: 2018

Build. Chance. Providence. Transition. Endurance.

Now?

Flux.

Why?

It just feels right.

It sounds better than “blank”, which is really how I feel right now.

I was going to class it up with “transition,” but been there, done that.

This time feels less formal than a transition, like taking a deck of cards and throwing it in the air kind of formal (as in there’s no order to it, at all).

I’m not completely lost, but things are more or less wide open in terms of my next steps.

It’s not like I wake up every morning wondering what to do with myself, at least not every morning.

It’s more of a discernment thing.

One of my most favorite things to do.

(Not really)

I’m not on the verge of existential crisis or anything, at least not yet, but it can easily go that way, based on past performances.

I’m not in any particular predicament either, but again, it could easily go that way.

I do have a tendency to misjudge situations, like staying in temporary jobs too long or not staying in a position long enough to make it a solid life decision.

Do you see why I chose “flux” instead of “transition” (again) this year?

Similar situation, but far less structured, less direction, more questions that will need answering, at some point.

(I’d like it to be sooner rather than later, but God tends to have other ideas)