Who Is Sarah K. Perkins?:
I never thought I’d become a disability advocate, never mind a known one who people turn to for advice; that kind of thing was for someone else, not me. I’ve never considered myself an interesting person but a person much wiser than myself told me to give it a shot and then suggested that I “take my show on the road,” so I did.
I’m a writer (and blogger long before it was cool). I’m also a speaker, advocate, and grad student. In my not so distant past I’ve been an actress, theatre tech geek, photographer, and managing editor for online publications.
As a recent college graduate I packed up my stuff and moved across the county to live in a house with 3 other people I had never met and work for a childcare program overseen by a larger nonprofit agency. We may have lived under the fiscal poverty line but it allowed me to become one of the richest people. I wear the motto “Ruined For Life” proudly.
I’m an extroverted introvert. I am happy meeting new people if closely followed by binge TV watching from the safety of my own bed. I have FOMO and/or FOMA, much to the dislike of my introverted personality.
Why “most usually unusual”?
It’s kind of a joke, except when it’s not.
Having Cerebral Palsy (CP for short) means that I live under an umbrella; CP is an umbrella condition, meaning that it affects everyone who has it differently. There are graphs, and charts, and classifications, but they can only tell you so much about a person, both medically and in daily life.
When I began transitioning my medical care (from pediatrics to adulthood) I would hear attending physicians tell their residents “she’s pretty unusual” and that it’s highly unlikely that they’d see someone like me ever again, never mind as a case study.
Pretty soon it just became “She’s mostly usually unusual.” I guess I’m a living illustration of the practice of medicine being just that, practice. Most people spend their lives wishing they could find some way to stand out from the crowd.
The older I get the more I realize that I was given the gift of not needing to find a way to stand out (although I’ll admit it’s not always the happiest gift to receive). But I have a sense of humor about it, thankfully.