International Day Of Acceptance

When I started gaining attention for being an “adult with special needs” (seriously that’s what I’ve been called, more than one should), I spent time reading other blogs, mainly seeing if there were any common myths out there that needed to be debunked (not many worth debunking, for the record).

I noticed that a few people, mostly CP moms (as in moms who have kids who have CP), would mention something called 3E Love. Curiosity got the best of me so I checked out 3E Love for myself.

I bought my 1st wheelchair heart tee shirt (& sweatpants) at my first Abilities Expo. I LOVE the sweatpants. I wonder how I ever traveled without them.

I bought my dad his first shirt before his first Abilities Expo, and did the same for my cousin (it’s become a tradition I guess).

Several people in my life have 3E Love products; my dad even uses a 3E Love sicker to cover up a ding on his car.

I was able to hear Stevie (also known as Annie’s brother) share the story of 3E Love & speak to him personally a few times.

I never had the opportunity to meet Annie but I have a feeling I would’ve liked her based on what I know about her. Our shared skill of using kitchen tools as accessibility aids notwithstanding, I’m pretty sure she was an awesome person to know.

3E Love & the Wheelchair Heart were created by Annie (also known as Stevie’s sister).

wheelieheart

Stevie & his family started the International Day of Acceptance as a way of remembering Annie.

Join in the movement of acceptance.

IDoA

*A similar version of this post first appeared on an old blog on January 20, 2014

International Day Of Acceptance

IDoA

When I started gaining attention for being an “adult with special needs” (seriously that’s what I’ve been called, more than one should), I spent time reading other blogs, mainly seeing if there were any common myths out there that needed to be debunked (not many worth debunking, for the record).

I noticed that a few people, mostly CP moms (as in moms who have kids who have CP), would mention something called 3E Love. Curiosity got the best of me so I checked out 3E Love for myself.

I bought my 1st wheelchair heart tee shirt (& sweatpants) at my first Abilities Expo. I LOVE the sweatpants. I wonder how I ever traveled without them.

I bought my dad his first shirt before his first Abilities Expo, and did the same for my cousin (it’s become a tradition I guess).

Several people in my life have 3E Love products; my dad even uses a 3E Love sicker to cover up a ding on his car.

I was able to hear Stevie (also known as Annie’s brother) share the story of 3E Love & speak to him personally a few times.

I never had the opportunity to meet Annie but I have a feeling I would’ve liked her based on what I know about her. Our shared skill of using kitchen tools as accessibility aids notwithstanding, I’m pretty sure she was an awesome person to know.

(I can do a lot with grilling tongs myself)

3E Love & the Wheelchair Heart were created by Annie (also known as Stevie’s sister).

wheelieheart

Stevie & his family started the International Day of Acceptance as a way of remembering Annie.

Join in the movement of acceptance.

*A similar version of this post first appeared on an old blog on January 20, 2014

National Cerebral Palsy Day

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Today is National Cerebral Palsy Day, not to be confused with World Cerebral Palsy Day which is in the fall. Lest we forget that this month is Cerebral Palsy Awareness Month anyway.

Can I be honest with you for a minute?

I get so peeved with how disjointed the CP community is.

I know we’re all aware of CP every day. It’s a “side effect” of living with it, naturally. But it’s hard to get people’s attention when we’re commemorating so many different days, with similar names. And let’s not forget about the Green Dilemma.

When it comes to effective awareness more isn’t always better.

I united front most come first.

There is true power in numbers here. CP is the most common motor disability in childhood (and I wonder just how common it is in adulthood because of that statistic). So we have the numbers right there.

What we lack is unity.

I often ask myself why that is. I don’t keep myself up nights thinking about it but it’s rarely far from my thoughts. Other health related communities have strong communities. Why doesn’t CP? Where (or what) is the disconnect for this community in particular, more importantly, how do we fix it?

I don’t know where the divide truly is, but allow me to tell you about some of the divisions I’ve noticed, in no particular order:

-Doctors neglecting to recognize and voice the need for a transition process and quality providers.
-Parents of CP kids not acknowledging potential commonalities between their child and older individuals with CP (and/or vise versa).
The range of ability/disability CP caused by CP itself.
-Lack of organized advocacy, whether under advocating or over advocating for one individual (or a small group).
-Individuals not wanting to disclose their disability.
-Hesitancy (or lack of) role models.
-Lack of large organizations genuinely serving their intended population.
-Lack of awareness of the existing community and seeking partnerships.

There’s more but those are just the highlights, in my opinion.

Tell me. What do you think helps or hurts in the success of health/disability related communities?

Truth Or Porn?

I always try to make a conscious effort to tell the truth but be as positive as possible. However I’m not perfect and my intention ends up being just that, an intention rather than an action.

An all too common problem faced by the disability community is inspirational porn.

If you’re not familiar with inspirational porn let me enlighten you inspirational porn is using someone’s disability to make the non-disabled feel better about themselves or trivializing a person’s disability.

The other day I posted a picture on my Facebook page that I’ve shared before because I thought it was an interesting take on Cerebral Palsy. But after I posted it I had second thoughts.

“Is this inspirational porn?”

I agree (with most of the disability community I think) that inspirational porn must end AS SOON AS POSSIBLE. I understand the intention in most cases but the execution is just so far off that the whole thing needs to end.

We’re more alike than we are different than our able bodied counterparts it’s time to be taken off the pedestal we’ve been put on and stop being objectified to make others feel better about themselves.

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What do you think, are these images truth, or porn (or both)?

International Day Of Acceptance

IDoA

When I started gaining attention for being an “adult with special needs” (seriously that’s what I’ve been called, more than one should), I spent time reading other blogs, mainly seeing if there were any common myths out there that needed to be debunked (not many worth debunking, for the record).

I noticed that a few people, mostly CP moms (as in moms who have kids who have CP), would mention something called 3E Love. Curiosity got the best of me so I checked out 3E Love for myself.

I bought my 1st wheelchair heart tee shirt (& sweatpants) at my first Abilities Expo. I LOVE the sweatpants. I wonder how I ever traveled without them.

I bought my dad his first shirt before his first Abilities Expo, and did the same for my cousin (it’s become a tradition I guess).

Several people in my life have 3E Love products; my dad even uses a 3E Love sicker to cover up a ding on his car.

I was able to hear Stevie (also known as Annie’s brother) share the story of 3E Love & speak to him personally a few times.

I never had the opportunity to meet Annie but I have a feeling I would’ve liked her based on what I know about her. Our shared skill of using kitchen tools as accessibility aids notwithstanding, I’m pretty sure she was an awesome person to know.

(I can do a lot with grilling tongs myself)

3E Love & the Wheelchair Heart were created by Annie (also known as Stevie’s sister).

wheelieheart

Stevie & his family started the International Day of Acceptance as a way of remembering Annie.

Join in the movement of acceptance.

*A similar version of this post first appeared on an old blog on January 20, 2014